English · Lyme

My Lyme’s disease symptoms, part 1

One of the reasons Lyme’s disease (like many other bacterial diseases) is so hard to diagnose is because the range of symptoms it can cause is really wide, inconsistent and changes from person to person. The only symptoms I am going to be talking about are the ones I have personally experienced, which are a very limited selection of what Lyme has on offer. If you want a more complete list the internet can probably help.

When I first went to my Lyme doctor she asked me to describe my symptoms to her, and when I was done gave me about 30 more, asking if I had experienced them or not. It was a bit of a shock for me to realise how many things were “wrong” with me.

Because there really are quite a few things I am going to separate them in two different posts. So here are the symptoms that I don’t have anymore :

  • Frequent sleep twitches : now don’t freak out, over 50% of the population has experienced that, it doesn’t mean you have Lyme. But at the time I would never fall asleep without having at least 3 of them. It wasn’t the worst symptom and it was one of the first to go.
  • Feeling like you can’t get enough air in your lungs : this isn’t quite like being out of breath. The best way to describe it would be that I constantly needed to try and take big breaths, but never physically could because it would be painful.
  • Rashes over my torso or face : this was very random and I couldn’t always feel it but I would often  get tiny little red spots all over that would leave after a day or so.
  • Itches : sometimes my rashes would be itchy or burning.
  • Seeing shadows pass very quickly on the side of my field of vision : for some reason this one didn’t freak me out very much. I just got used to have hallucinations of my (black) cat all the time.
  • Pain in my calves : weirdly enough it felt like it was the bone that hurt, and it made walking or sometimes even standing excruciating.
  • Stomach pain and acid reflux : this can be very intense in people, I was lucky enough to only have it bad for a few months.
  • Whistly ears (tinnitus) : these were horrible for awhile, they made me go crazy. I still get them, on and off.
  • Dull pains in my knees (particularly my right one) : they improved quickly to a manageable level but I never got completely rid of them. There was a point where I couldn’t walk more than 10 minutes though, which is definitely not the case anymore.
  • Sore throat : this is a weird one. I would always wake up with a sore throat, just as though I was going to be ill. It would sometimes get better during the day, sometimes stay for weeks on.
  • Clogged or blocked ears : for some reason the ear related symptoms were by far the hardest ones for me to deal with. Having very clogged ears for a full day is my personal nightmare.
  • Weight gain : from the day I got bitten to the day I went to the doctor I gained about 10 kilos without changing my lifestyle or diet at all. It took another 6 months after the beginning of the treatment to lose it but when I did it happened within 3 weeks (which got me a lot of comments from everyone around me from friends to family or even colleagues).
  • Intellectual fatigue : memory loss pretty much. I wouldn’t remember anything I had to do which made doing life much more complicated. I would even forget words (very basic ones)

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